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Help Save Baby Giovanni's Life!
Acct. ID: 265084
Notice ID: 14601
Posted: March 17th., 2007
This Notice has been viewed 5161 times
Proclaimed by: Amber Moonstone
Proclaimed from: Middletown, Connecticut
A friend of mine has a baby son named "Giovanni". He is very sick and needs a bone marrow transplant. Please click on this link and read all about this beautiful baby boy. There are thousands of people all over the world, praying and supporting him in his battle for life. Thank you for your prayers and support.......From the bottom of my Heart, Amber Moonstone
Please visit :
www.helpgiovanniguglielmo.org I ask of you,
I ask you for prayers and support during this portion of Giovanni's medical journey. He is enduring much pain and has a rocky road still ahead. Thank God/Goddess, that a donor was found. To this precious little boy, make him heal and rise above this place of pain in his journey here on earth.
HERE IS AN UPDATE ON BABY GIOVANNI:
For the month of January, 2008
January 6, 2008
Saving Giovanni +291
Giovanni enjoyed his Christmas and being with the family more than words can express. He is now holding up his arm and waiving his hand, his smiles are constant, and he's becoming more and more vocal having now discovered his ability to scream.
He wants to eat abdult foods but still can's swallow, so he experiences the texture of the foods but keeps the food in his cheeks like a squiel storing nuts. A oral stimulator was supposed to be coming to the house for the past two months, but has yet to show. Christina put a call in Friday requesting this therapy because it will delay Giovanni's further development. We want to start eating foods but more importantly learning how to swallow. We let him have foods to feel the texture but after a while he will begin to cry and we need to take the food out of his mouth, which he also fights against.
A third tooth has come in pointed. He now has three teeth indicating ectodermal dysplasia (ED) but the severity is still unknown. Testing will begin at Boston Children's Hospital on the 25th. Another characteristics of ED is sparse hair. Giovanni's hair appears to be getting thicker after having lost it all from the chemotherapy, so hopefully this will continue. One treatment for this condition of ED is a wig, which we don't want to contemplate. I'd rather he just go bald and grow knowing he has no hair than dealing with a wig and the ridicule of other kids. With respect to his deformed teeth once they all grow in them must be removed and Giovanni then fitted with dentures, which must be adjusted each time his mouth grows until his adult teeth come in and they are removed and replaced with posts and caps.
All in all, we are happy Giovanni is alive and well and progressing through the one-year transplant window free of complications.
We have continued our pledge to put 100, 000 people in the internaitonal bone marrow registry and are now teaming up with the American Red Cross to do bone marrow drives. We already have 20 drives scheduled this year and our total is now 11, 135.
Thank you for all the support.
"To live is to love, and to be loved is living!" AM
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