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Page: Profile: Notice
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Notice Specs
Acct. ID: 212050
Notice ID: 16241
Category: Action
Posted: January 20th., 2009
This Notice has been viewed 114 times |
Let's Make A Difference!
Proclaimed by: DragonSpells
Proclaimed from: Corning / Painted Post, New York
Proclamation...
Hey Everyone,
Well, it's the new year. Time to make (and break) resolutions. One of my resolutions is to get more involved and make a difference, and I need your help. Some of you know and some of you don't, this year I'm rejoining the Great Strides Cystic Fibrosis walk-a-thon in Elmira. This year I want to do something BIG, so... I created a team! Now that I've done that, here's what I need you to do...
If you're in the Corning/Elmira area join me! All you have to do is register on the site under my team- team Panacea- and print out your sponsor form (or get one from me.) Sponsors can donate online or in person. The team goal is only $1000, and my personal goal is $150. Set your own goal and go get some sponsors! It's only a 10k walk (about 6 miles) and there are refreshments at the end. There are also prizes for raising money. The more you raise, the bigger the prize. Everything from t-shirts to iPods. If you have any questions about registering or the walk, e-mail me. The walk is on June 6th, a saturday, so we've got lots of time to raise lots of money. Let's do better.
For any of you NOT in the Corning area, and you want to support me and team Panacea, you can donate online. It's super easy and totally secure. $25, $20, $10, $5... anything you can do will mean so much.
You can Register AND Donate both at the same link: http://www.cff.org/Great_Strides/DeannaEberlin5846
If you can, please join me in the walk. It'll be tons of fun and we'll be doing something really special for kids. Let's make memories, and a difference. If you can't walk with us, please consider donating.
Be Well,
Deanna ("Spellz")
And in case you're wondering:
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30, 000 children and adults in the United States (70, 000 worldwide) . A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
clogs the lungs and leads to life-threatening lung infections; and
obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Symptoms of Cystic Fibrosis
People with CF can have a variety of symptoms, including:
very salty-tasting skin;
persistent coughing, at times with phlegm;
frequent lung infections;
wheezing or shortness of breath;
poor growth/weight gain in spite of a good appetite; and
frequent greasy, bulky stools or difficulty in bowel movements.
Statistics
About 1, 000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 40% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is more than 37 years.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters--patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Website: http://www.cff.org/Great_Strides/DeannaEberlin5846
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